Tuesday 19 March 2024

#This is MS

๐Ÿงก OK, #MSFamily... we know the technical definition of MS, but what other ways can you explain it to others? ๐Ÿงก

Use the hashtag #ThisIsMS and start with “MS is...”

➽►→ #This is MS ←◄

#MS #MultipleSclerosis #MSAwareness #WeGetIt





  • MS is always with me, there  when I sleep and when I am awake. Sometimes it's quiet but others its makes sure you know they are boss. I can't control my body or brain, I can't trust myself, I can't do everything I want and people leave. Yet I fight, my spirit is strong - @SamsaraBLVG

  • MS is depression. Feeling super isolated and hopeless. Feeling like nobody understands. Then I remember, there's more of us with MS. And we all probably feel this way.

  • MS is going to bed sober and waking up drunk!

  • MS is a *bleep*bleep* that you have to kick hard in the butt every day!

  • MS is looking for something even though you’ve forgotten what it is you are looking for. 

  • MS is never knowing what simple tasks will exhaust you from day to day. It’s wanting to get so many things done and not being able to. It’s also very difficult to explain yourself to those you need the most from. MS can be quite burdensome. 

  • MS is doing things bassackwards and laughing like mad when you realize it!

  • MS is finding strength at the bottom of the barrel!

  • When you’ve met one person with MS, you’ve met one person with MS.

  • MS is learning when enough is enough whether other people think so or not!

  • MS is learning things you never knew you needed to learn and being a better person for having learned them. 

  • MS is being loud and proud of even tiny accomplishments!! We Rock!

  • MS is having two degrees in language and still not being able to summarize the disease in a single sentence.

  • MS is when your immune system takes a shotgun to the connections in your central nervous system.

  • MS is dying inside when you hear one of your kids drop the shampoo in the shower or complain of muscle aches after a workout.

  • MS is waking up every day not knowing if you’ll be able to function.

  • MS is trying to drive a car without any gas, uphill, in the winter.

  • MS is a random bastard.

  • MS is predictably unpredictable.

  • MS is life altering.

  • (MS has) changed my life in a way I could never have imagined... some days it’s hard to move, but I’m slowly getting the power back to control my life. MS will not define me or how I live my life.

  • MS is like the drunk uncle at Thanksgiving who no one wants there, but also can’t quite get rid of.

  • MS is waking up and thinking, am I doing enough to fight this disease? It’s about taking responsibility for how you treat your body. MS demands to be 1st. 

  • MS is an unpredictable shit show... it’s the reason I don’t make plans and/or cancel plans... it’s the random pains and inability to use my right side at times... it’s the cause of my mood swings... it’s the illness that completely changed my life.

  • MS is learning to laugh at yourself and the often silly -- and sometimes heartbreaking -- things it causes your body to do.

  • MS is listening to your body, resting and not putting too much pressure on yourself! Not feeling guilty for cancelling plans. However I feel others will never understand. I am supposed to rest, don't tell me I need to 'get out more'! 

  • MS is getting used to actually planning time to do NOTHING without feeling guilty.

  • MS is like putting your PC into standby mode. Only it's your body and brain, with just enough power left to keep you breathing but not much else. It's also random, you don't control the 'sleep button' in this analogy.

  • MS is life altering.

  • MS is constantly adapting to challenges the Most Shit disease throws our way.

  • MS is forgiving yourself first for not being able to do it all, forgiving others for not understanding, and accepting that you are STRONG no matter the increments! Strength is power, power is change!

  • The Spirit said ‘you probably should’... The Body said ‘nah, girl. not today’.

  • MS is a disease that makes you learn how to gamble.

  • MS is having a rogue army of white blood cells attacking your nervous system.

  • MS is like living with a really patient Zombie with amazing portion control. Zombie: “Shall I eat a little myelin today”.

  • MS is feeling like you’ve turned stupid even though you know you’re not!

  • MS is looking for something even though you’ve forgotten what it is you are looking for.

  • MS is when your immune system takes a shotgun to the connections in your central nervous system.

  • "A new challenge every day" - @laurju

  • “Not just a mind fuck…” - @TwoTonTonyTubbs

  • "MS is an all compelling mind and body feck up" - @HansiLouise

  • "Bird Shit Soup!" - @Steelers_VA

  • "Relentless!" - @6_James_9

  • "MS means Made to Survive" - @vivjoywriter_ms

  • "A pain in the butt, and the legs, arms, feet, hands..." - @JorgeMo52039299

  • "Bloody annoying " - @paul_griffin1

  • “MS is unpredictable, unending and never understandable” - @Clarey691

  • ‘My MS has been MS’ing’ - @kim_crotty

  • "MS is being MSy" - @BelindaTeaches

  • "My marks & sparks is sparking " - @mickio998

  • "My MS is complete BS" - @Coffinessence

  • "My MS is Messy. #MS is messed up!" - @modalthetortois

  • "My MS is living its best life with zero regard for myself " - @Slm2138

  • “I’m having an MS’ey day” - @CrowFavBird; @LynneKerrUK

  • MS is an uninvited guest who refuses to leave - @jbpsmkr10

  • MS makes it impossible to predict if I will be able to walk or feel my legs on any given day - @jbpsmkr10

  • MS steals any sort of ability to accurately plan the next life step - @jbpsmkr10

  • MS is the greatest motivator I've ever had to get healthy. MS has made me value more than ever my gift of life - @jbpsmkr10

  • MS is having a grumpy toddler, who's constantly on the edge of throwing a tantrum - @dizzythedonkey

  • MS is Annoying! - @paul_griffin1

  • MS is mad dog shite - @clojoc

  • "MS is f'ing weird!" - @Eatinglemonsblg

  • “It’s like swimming upstream every moment you’re awake” ~ Oriana Hill

  • "MS is a fussy diva" - @MissKFergie




"Describe multiple sclerosis in one word..."

HUGEST thanks to Penelope Conway @PositiveWithMS

  • Unwanted - @GenaMSwarrior
  • Unreliable - @Chalenging_MS
  • Inconvenient - @TwoTonTonyTubbs; @KarenKirkham15
  • Diva - @MissKFergie
  • Unpredictable - @Brandon_Beaber; @suz_whipp; @pumpkingyrll77; @Nurinxxi; @Lozzykinz; @BuckeyeKPC; @misskerry84; @SweetGreek71; @Quelanany; @amygertie; @FabulistaThe; @frominhere; @RoxyMSAdvocate
  • Stigmatized - @HeyyItsBrigitte
  • ๐Ÿ’ฉ - @DrMarkDHowell
  • Shit(e) - @connyrehorst; @jax1996; @MrsNPicola; @PinkySue58; @lancaster_ruth; @IanDaly15; @GraciesmumMS; @GraciesmumMS; @Kevdl666
  • Rollercoaster - @zoederrick; @Delynn43
  • Random - @SpoonProduction
  • Hideous - @CharleneGreen76
  • Misunderstood - @PaulTraynier
  • Frustrating - @1guywithms; @jlwashi; @MarieHeron16
  • Debilitating - @shuffle_bucket
  • Annoying - @KerryGalcik; @DrAnnaWeighall; @whereisrobbie;  @LittleBell30; @blairjoyce3; @beanzyandfatty; @helytweet; @CallMeDTen1
  • Exhausting - @keifib; @WhoGalinTARDIS
  • Relentless - @MinnieCRiley; @lisaoates70; @Kellyon97; @ElizabethThyrum
  • Erratic - @CathyChes
  • Bastard - @lancelotspram
  • Mean - @Maribet36942478
  • Challenging - @JeffJjurey; @bonillaportilla; @sakaidiaz
  • Evil - @mikesmsjourney; @Hawks50_2
  • Unforgiving - @MLipham222; @licker224
  • Devastating - @chichappens5
  • Inexorable - @JesswithMS
  • Angry - @PapaMcintosh
  • Debilitating - @teawhitenone83_
  • Garbage - @heatherp112
  • Hell - @AndiPandyBee
  • Bittersweet - @CarolynBEdwards
  • Complex - @tladler22
  • Brutal - @MLipham222
  • Scary - @catey514; @bharatbhuchawla
  • Isolating - @SLHurdles; @littlemssunsh10
  • Impermanence - @battling_ms
  • Paralyzing - @mztracy
  • Traumatic - @Budasfeather
  • Expensive - @jlwashi
  • Selfish - @MattWhi00434438
  • Killjoy - @TFTexan
  • Ugh - @grumpypiglet6; @Offensivehere
  • Uncertain - @CBar50456426; @roz_laura
  • Hell - @r4sh31; @DraculasDaught5
  • Confusing - @memary_mcp
  • Torture - @JharkerRekrah
  • Knackering - @amb6812
  • Weird - @uzziwozzi; @heathenstanley
  • Unmanageable - @PurplePixelsTV
  • Disappointing - @MS_jimwilson
  • Painful - @emmaj1_77; @Snax_me; @Marc6691; @MattsBigMouth
  • Crushing - @A_Brooke_W
  • Uncertainty - @Copaxah
  • Overwhelming - @msedover
  • Challenging - @helenbellauthor
  • Chaotic - @625aly
  • Discombobulating - @Albat_Ross
  • Thief - @MSWarrior37; @AshaGaines617; @DianaHain; @iZalo3y
  • Complicated - @S_u_a_h_a_i_l
  • Limiting - @CurtRiggle
  • Heartbreaker - @starsailorstar
  • Struggle - @JasonAllanScott
  • Demoralizing - @insanitydezigns
  • Tiresome - @TheReelLiveGirl
  • Misunderstood - @RyanDYoder11; @pennymoore28
  • Insecure - @Dr_sami103
  • Agony - @riickshaw
  • Discouraging - @AttiUski
  • Cataclysmic - @megs1477
  • Lonely - @donnalou86
  • Fight - @BradThomas
  • Thug - @lib118
  • Unspeakable - @kaplanorhan2703
  • Hopeless - @JoanaCarou
  • Limiting - @sarah_musicon
  • Unknown - @kto75
  • Stuck - @jrbraun13
  • Lame - @dustinpena
  • Freaky - @ope0407
  • Numbing - @jus_tia
  • Multifaceted - @MarkColMSWar
  • Pain - @agniakandy
  • Unfortunate - @VisibleNinja18
  • Destroying - @LittleJohnHuntr
  • Heartbreaking - @laura_j99
  • Puzzle - @aram_razouqi
  • Unexpected - @ctanner1519
  • Fear - @sesmalo
  • Fucked - @PpmsWarrior; @jmsbd777
  • Fuckery - @napsRus
  • Fuckity - @nailbarrr; @nailbarrr
  • Arse - @Coz2008
  • Frustrating - @MaBurns072105
  • Raggedy - @blaquebanshee
  • Bitch - @TwoFacesofMS
  • Stupid - @subpoenaqueen
  • Challenging - msdiva4life247
  • Horrid - @SSmith1323
  • Beast - @daveserjeant
  • Challenging - @AnitaW1491
  • Scary - @catey514
  • Misunderstood - @klincos
  • Eye Opening - @Social4Sarah
  • Undisciplined - @Kooljay316
  • Inconvenience - @LauraHa77295533
  • Maddening - @Chipper51
  • Uncertainty - @ALEM_Medellin
  • Exhausting - @marducey
  • Eye-Opening - @dariakl
  • Unexpected - @maritevi
  • Tiring - @Inga_Christine
  • Stupid - @ms_pissed
  • Exhausting - @beccaboo71
  • Destructive - @vickyvickyj75
  • Nightmare - @AmySmith20014









๐Ÿงก #MS Twitter Tags ๐Ÿงก
๐Ÿ”ต ➽►→ #MS Tags ←◄ ๐Ÿ†—











Bookmark this page: #This is MS

Peas be with ewe 
Mal

My Current Blog Posts




Current  ๐Ÿ’ฅ




I've been tweaking my blog here, and my regular blog posts may have become shuffled about with all the adjustments, etc.

Here are my most recent "Newslettery" keeping-in-touch blog posts for you to browse and explore at your own pleasure and leisure. Thanks.





  • Visit with my eldest son and his wife on their country property + photos  (Blogpost)  ๐Ÿ’ฅ 





๐Ÿ’ฅ Current Blog Posts ๐Ÿ’ฅ



  • 19 March '24 - Time of the Season (Autumnal tree pics)  ๐ŸŒฒ๐Ÿ“ท

  • 19 March '24 - The Giving Tree (2023-24) Pics + Video  ๐ŸŒณ๐Ÿ“ท

  • 18 March '24 - Movies I've Watched, Enjoyed and Appreciated Recently  (Blogpost) ๐ŸŽฆ



  • 8 March '24 - It's a Manly Thing  (Blogpost)  ๐Ÿ‰ ๐Ÿฆ…

  • 29 Feb '24 - My great little air conditioner  (Blogpost)


  • 11 Feb '24 - My Goldfish (Thoon & Katia)  (Blogpost) ๐Ÿ 

  • 28 Jan '24 - Music I've Enjoyed and Appreciated Recently  (Blogpost)  ๐ŸŽต๐Ÿ‘

  • 25 Jan '24 - My MS Anniversary... 7 years ago.  ⚕️๐Ÿงก


  • 19 Jan '24 - Magpie Mimic  (Blogpost)  ๐Ÿฆ



  • 6 January '24 - Dad's been gone for 27 years - woah!  (Blogpost)





  • 2 Nov '23 - Sewing Success... that THAT, MS!  ๐Ÿ˜

  • 31 Oct. '23 - Odd Socks: Take a break and have a laff  ๐Ÿ˜„๐ŸŽต๐Ÿ˜

  • 29 Oct. '23 - MS Fatigue  (Blogpost)  ⚕️๐Ÿงก


  • 27 Sept '23 - September Catch-up  (Blogpost)  ๐Ÿ’ฅ


  • 20 Sept '23 - Odd Socks  ๐Ÿ˜„๐ŸŽต๐Ÿ˜

  • 20 Sept '23 - My view about Twitter / "X"  (Blogpost)  ๐Ÿ’ฅ


  • 4 Sept '23 - Blood Pressure Monitor & Tips ⚕️

  • 27 Aug '23 - Sam's 30th Birthday (Blogpost)  ๐ŸŽ


  • 10 Aug '23 - Two new meds (Blogpost)  ๐Ÿ’ฅ ⚕️

  • 7 Aug '23 - Edward (My Teddy Bear) + Rufus  ๐Ÿงธ

  • 2 Aug '23 - 'Top'n'Tail' Time  (Blogpost)  ๐Ÿ’ฅ⚕️๐Ÿ’œ

  • 31 July '23 - Baking Bread at Home  (Blogpost)  ๐Ÿž

  • 26 July '23 - New Vacchume & Dust Buster  (Blogpost)  ๐Ÿ’ฅ

  • 23 July '23 - 59th birthday selfie  ๐Ÿ“ท๐Ÿคณ

  • 19 July '23 - Many Days in the Life  (Blogpost)  ๐Ÿ’ฅ 



  • 9 July '23 - Home Again after My Latest 'Adventure' ๐Ÿ’ฅ + New Phone  (Blogpost)  ๐Ÿ“ฑ 

  • 5 July '23 - Kidney Stones  (Blogpost)  ๐Ÿ’ฅ


  • 27 May '23 - A Quick One  (Blogpost)  ๐Ÿ’ฅ

  • 11 May '23 - Some Pics from my Daily Walk... and I've Sold a Guitar  (Blogpost)  ๐Ÿ’ฅ

  • 28 April '23 - My Medicines are Easy to Access Here  (Blogpost) ⚕️

  • 25 April '23 - The Time of the Season (Autumnal Tree Pics & Videos) ๐ŸŒฒ๐Ÿ“ท - FINISHED for this year 

  • 15 April '23 - The Giving Tree (Videos & Pics 2022-23) ๐ŸŒณ๐Ÿ“ท - finished for this season: Sleep well, my Friend.

  • 6 April '23 - It's Been a Good Month  (Blogpost)  ๐Ÿ’ฅ



  • 27 March '23 - Movie "Close" (2022) - 5 out of 5  (Blogpost) ๐ŸŽฆ

  • 25 March '23 - Spring Cleaning in Autumn  (Blogpost)  ๐Ÿ’ฅ

  • 24 March '23 - I've Voted - NSW State Election  (Blogpost)

  • 21 March '23 - "And Another Thing..."  (Blogpost) ๐Ÿ“–








  • 18 March '24 - My DVD Movie Collection (1,000+ titles) ๐ŸŽฆ

  • 15 March '24 - Silly Snapchat Filter Selfie Pics  ๐Ÿ“ท๐Ÿคณ

  • 13 March '24 - My Views from Home  (Blogpost)  ๐Ÿ“ท๐Ÿ ๐ŸŒณ




  • 13 Oct '23 - Mental Health Resources (Australia) ⚕️๐Ÿ’š












  • 10 Aug '23 - My Current Prescribed Medications  ⚕️


  • 24 July '23 - Some Online Comics (when it's a slow day)










  • 6 June '23 - Across the Road (St. Joseph's Mount)  ๐Ÿ“ท






  • 13 Jan '23 - How to CURE any illness! ๐Ÿ˜†๐Ÿ˜‚๐Ÿ˜œ


  • 11 Jan '23 - Grabber/Reacher Tool "The Grabbler"







  • 12 July '22 - THE worst music album of all time - official: "The Shaggs" ๐Ÿ˜„๐ŸŽต








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➽ Photos of Myself ➽ About Me➽ My Health Stuff 

➽ Site Map ๐Ÿ’ฅ






Bookmark this page: Current Blog Posts

Peas be with ewe 
Mal

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(aka. "Lancelot's Pram")











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Mal