The joys of having various chronic health conditions... oh, I've gotta laugh!
► NB. I am on NO DMT medication for my MS.
- 💥 Rivaroxaban / Xarelto: 20mg once daily (a blood thinner, to prevent any further PE's).
- 💥 Valsartan (Diovan): 320mg once daily (for my Blood Pressure).
- 💥 Effexor / Venlafaxine: 150mg once daily (an anti-depressant... I nickname this one my "Happy Pill").
- 💥 Mercaptopureine / Puri-Nethol: 100mg twice daily (for my Ulcerative Colitis... I nickname this one "Metaporcupine").
- 💥 Pantoprazole / Somac: 20mg once daily (for my Ulcerative Colitis... I nickname this one "Soma").
- 💥 Salazopyrin (Pyralin): 500mg 3 x twice daily (for my Ulcerative Colitis).
I call these six meds of mine:
"For my 'blood', 'brain', 'bum' and 'bastard' "!
- Vitamin D supplement: 1,000 IU/day (for my MS).
- A few days a week, I take a Maltofer Iron tablet, for my iron /anemia... sure, it turns everything black [cough...], but, for me, it really seems to be helping.
- I have a (Ferinject) Iron infusion about every c.6/9 months (for my Anaemia).
- Prednisone: Occasionally, 25/mg daily, tapering off 5mg/weekly to nil (this helps reduce a flare of my Ulcerative Colitis).
- Cortiment / Budesonide (Corticosteriods): Occasionally, 9mg once daily (this helps reduce a flare of my Ulcerative Colitis)
- I was considering going onto monthly Tysabri infusions for my MS (back in 2017), but decided against it - for various reasons. My Neuro was considering putting me on Gilenya in 2022, but after my MRI in mid-2022, he saw no need for any MS medications - yay!
- I'll need ongoing bi-annual MRI brain and neck scans, to check the progress of my MS (if any!) as well.
- One walking stick and/or walker (external application only...)
I was on Mesalamine / Pentasa: 500mg two tabs twice daily (for my Ulcerative Colitis), but not now - it was having negative side effects on me!
I finally got myself one of these Daily Pill Sorters, after too bloody long [why hadn't I done this years ago? Doh!] - this is way too easy. (It's my own 'Webster Pack' as such... it's a drag having to be your own Chemist doing this, but it really helps.).
💥 To be honest, I hate being on all these daily meds, but catch-22: I'd be stuffed without them.
💥 Thank goodness for the PBS - there's no way I could afford these medicines otherwise!
► I have a Blood Pressure Monitor here at home.
► It's all a bit of a "Balancing Act" for me, really.
Bookmark this page: Medications
Also: Mal's Meds
Peas be with ewe
Mal
Mal
Has anyone suggested tysabri or ocrevus for your MS? Those have worked spectacularly for me: no exacerbations in like 12 years since starting. Also wanted to say I think your blog is great, and being open and explicit will help people, with chronic illnesses and without, get a better sense of what it's like to have them. I had heard of the spoon theory, but didn't really get it until I read your description. I get it now, and it's completely descriptive of when I had serious fatigue issues.
ReplyDeleteGlad it helped - thanks!
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